DISEASES in the BRAIN -Locked-in Syndrome http://www.cdrex.com/

-is a condition in which a patient is aware and awake but cannot move or communicate verbally due to complete paralysis of nearly all voluntary muscles in the body except for the eyes. Total locked-in syndrome is a version of locked-in syndrome where the eyes are paralyzed as well.A rare neurological disorder characterized by complete paralysis of voluntary muscles in all parts of the body except for those that control eye movement. It may result from traumatic brain injury, diseases of the circulatory system, diseases that destroy the myelin sheath surrounding nerve cells, or medication overdose. Individuals with locked-in syndrome are conscious and can think and reason, but are unable to speak or move. The disorder leaves individuals completely mute and paralyzed. Communication may be possible with blinking eye movements.

-Tourette's(http://tourettecamp.com/index.php)

syndrome is an inherited neurological disorder. Early onset may be during childhood, and is characterized by physical tics and verbal tics. The exact cause of Tourette's, other than genetic factors, is unknown.

-Huntington's(http://huntingtonsaustralia.asn.au/)& http://www.huntingtonsociety.ca/english/content/?page=Staff%20Bio, http://www.hdsa.org/about/our-mission/what-is-hd.html

Huntington's Disease: a devastating, hereditary, degenerative brain disorder for which there is, at present, no cure and only one FDA-approved treatment (Xenazine) for a symptom of HD.. HD slowly diminishes the affected individual's ability to walk, talk and reason. Eventually, the person with HD becomes totally dependent upon others for his or her care. Huntington's Disease profoundly affects the lives of entire families -- emotionally, socially and economically.

-Migraine (http://www.americanmigrainefoundation.org/default.aspx) Migraine is an exceedingly common disorder which causes substantial pain, disability and societal burden.

-Arachnoid cysts http://www.causes.com/causes/366798-the-arachnoid-cyst-foundation

cerebrospinal fluid covered by arachnoidal cells and collagen[1] that may develop between the surface of the brain and the cranial base or on the arachnoid membrane, one of the three membranes that cover the brain and the spinal cord.[2] Arachnoid cysts are a congenital disorder,[3] and most cases begin during infancy; however, onset may be delayed until adolescence

1.

2. ) The Tourette Syndrome Camp Organization (TSCO) is a 501 (c)(3) tax exempt non-profit organization dedicated to promoting camping opportunities for children with Tourette Syndrome (TS) and its associated disorders, Obsessive Compulsive Disorder (OCD) and Attention Deficit/Hyperactivity Disorder (ADD/ADHD).
The Tourette Syndrome Camp USA, founded in 1994, is a residential camping program designed for girls and boys ages 8 - 16+ whose primary diagnosis is TS, and to a lesser degree, OCD and ADD/ADHD. The goal of the camp is to allow children with TS an opportunity to meet other children, share similar experiences and coping mechanisms in a fun, safe and positive environment.
The TS camp is run concurrently with a traditional camp week. While there are separate cabins for the TS campers, all programming is done with the rest of the camp. However, we do hold rap sessions with the TS campers so they have an opportunity to share their experiences with each other.
There is a nurse to handle medication and medical issues for the TS campers.
This is not a therapeutic program and the camp has some limitations in accepting children whose needs are beyond the scope of its design.
Campers must be able to handle routine daily living skills (i.e. dressing, self hygiene) and have the ability to function in a group setting. While the program is modified to meet the needs of most children whose primary diagnosis is TS, experience has demonstrated that not every child with TS is capable of participating in the camp program.

3.) *Australian Huntington’s Disease Association - is a genetic brain disorder. Each child of an affected parent has a 50% chance of inheriting the defective gene. It progressively affects the body, mind and emotions eventually leading to incapacitation and death about 15-25 years after onset. It mostly affects adults, usually appearing between the ages of 30 and 50. In very rare cases, people under the age of 20 can develop juvenile Huntington Disease. A small number of people will also develop HD in the later stages of life. In Australia, considered as a whole, HD will affect 6 – 7 people in every 100,000.
The Australian Huntington’s Disease Association (National) is an unincorporated body, the objectives of which are: • to promote a national profile for Huntington’s Disease Associations. • to provide a forum for planning by state associations. • to advocate in areas of national priority. • to develop national policies and standards. • to promote uniformity of purpose amongst state associations. • to benchmark best practice in areas of national priority. • to maintain relations with like-minded organisations world-wide. • to disseminate information nationally and internationally.
*The Huntington Society of Canada (HSC)- http://www.huntingtonsociety.ca/english/content/?page=Staff%20Bio - a national network of volunteer Chapters and Area Representatives, governed by a volunteer Board of Directors, and supported by full- and part-time staff at the Society's office.
The network includes professional Individual and Family Service (IFS) staff across the country at 10 Huntington Disease Resource Centres across the country , and 14 part-time IFS workers who are available on an on-call basis to provide support to HD families in areas of the country not served by a Resource Centre.
HSC's network also includes the Huntington Society of Quebec. There is effective communication and collaboration between both organizations as independent organizations working harmoniously in the fight against Huntington disease.
*Huntington’s Disease Society of America - The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families.To promote and support research and medical efforts to eradicate Huntington's Disease.To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.To educate the public and health professionals about Huntington's disease.

4.) The American Migraine Foundation is a non-profit foundation supported by the American Headache Society and generous donors dedicated to the advancement of migraine research. The mission of this newly formed foundation is to support innovative research that will lead to improvement in the lives of those who suffer from migraine and other disabling headaches.
5.) The Arachnoid Cyst Foundation brings awareness to doctors and aids patients in advocacy for their own health. At this time we offer patient support by helping them understand their MRI reports, directing people to stories that might assist in healing and understanding of their own condition, directing them to maps of the brain and how it co-ordinates with what symptoms they are experiencing.
However there is not a PROTOCOL for how we with Arachnoid Cysts age.
There is no one to mark the stages and problems suffers have as they age.
There are no studies to see how children act, behave, feel before and after surgery and there is no promise for one surgery and that's it.
Our Foundation's goal is to assist in patient education as well as teaching advocacy.