difficult process and its catastrophic form, Dravet syndrome (DS) is one that is devastating to most parents and children. Dravet Syndrome is a form of catastrophic Epilepsy that is life-threatening and has an onset in infancy.(Skluzacek, Watts, Parsy, Wical, & Camfield, 2011) Skluzacek et al.,2011, explain that it is characterized by "intractable seizures, developmental impairments, movement abnormalities and is detectable via genetic testing of mutations in the SCN1A gene that result in the dysfunction of voltage-gated sodium channels in neurons in up to 80% of individuals".(Skluzacek et al., 2011) Reports from the IDEA League states that children with DS have a host of comorbid conditions including: "Autism spectrum characteristics and communication, cardiovascular issues, dental health issues in the form of delayed tooth eruption, …show more content…
By age 1 year she had experienced more than 10 episodes of status lasting up to 11⁄2 hours but development was normal. Her mother recalls this time as very difficult because of frightening seizures and diagnostic uncertainty. At 11 months, additional seizure types emerged which were resistant to 15 different medications. Minor temperature elevations precipitated seizures. Cognitive development plateaued with severe hyperactivity and self-injurious behavior. For outings, she was only manageable if constrained in a wheelchair, equipped with oxygen, cell phone, a rectal