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End of Life

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End of Life Essay

It is very important for people to discuss and manage end of life issues. There are many issues that may need to have resolutions such as life support, curative vs symptom management, courses of treatment. Other issues such as burial plots and funeral arrangements. I have found that many people feel they have more time to discuss end of life issues. They feel that they have plenty of time to discuss their wants and wishes for the death and dying process with their loved ones. It is very important to discuss end of life issues with your significant others, spouses, children because one never knows when the end of life issues may come up. Maybe it is a young mother diagnoses with stage 4 ovarian cancer. Maybe it’s a 76 year old male patient that feels that while he has lived a good life, it is never enough time. Or it could be a 16 year old teenage girl that had a soft tissue sarcoma that wasn’t diagnosed until it had metastases all over her body. I have taken care of all of these patients. It is never too early to discuss end of life issues, but sometimes it can be too late. Death is very personalized such as life. It is important that the individual is allowed to pass in a manner that is important to them and to feel that they have taken care of issues that they may feel need to be resolved. We might think that we know what our loved ones want, but it could be very different from what they actually want. For example we may think that our loved one would want every medical treatment they could possibly have, but what they really want is to die at home. We may project what we think the patient should have done, when in all actuality it may not be what they had in mind. Caring for patients with a need to discuss end of life issues, it is important to look at the whole patient. It is good to use the assessment tools such as the HARP tool, and the Family preferences guidelines. It is good to assess what is important to the patient, whether it is spiritual issues, are they concerned with family needs, they may need community resources to help with care they need such as PT/OT, help to receive physician services, home health care, or possibly symptom management. It is important for the individual to say what they want with end of life decision making. For example, the patient may not want to have their life extended with heroic measures such as intubation or CPR. Nothing is more powerful than the patient’s own words even when the patient can no longer make decisions for themselves. This is where a complete advance directive comes into play. The patient may also have a MPOA, but this person does not make decisions until the patient becomes unable to make their own decisions. It is definitely a benefit for the person to also have an advanced directive because this can ease the decision making for the MPOA. The MPOA can know that they are doing what is best for the patient as well as what the patient wants. In reading the article Futility, Autonomy, and cost in End of life Care, the patient may decide to seek symptom management vs curative treatment. It is important to preserve patient Autonomy. The patient may have decided to terminate life support if they cannot be extubated. This is a quality of life issue and the patient has a right to make these decisions even though they may be incapacitated at that time. With an advance directive, they have already addressed the issues and have made it clear what they want. If patients have difficulty in deciding who should be their MPOA, you can assist the patient with the Consumer’s tool kit for health care advanced planning. When I think about my personal beliefs about death and dying, I know what I want. I worked as a hospice nurse and I know the importance of discussing end of life issues and making sure your wants and wishes are known. I know that I will go the curative route, and when the end of the illness was evitable, I would want comfort measures. Some patients seek curative treatment until the end of their illness. Other patients want to enjoy the rest of their life and to be able to have a high quality of life with their loved ones. I know that I would want my symptoms managed, such as pain, breathlessness, air hunger, etc., so I could enjoy my last days until I succumbed to my illness. I truly believe that this goes along with my belief in Christianity. I believe that we go to heaven when we die, for those who are saved. I imagine it would be different for the people who believe that dying is they end. They may seek to go to a curative route until the end. A key concept of EOL care is that an advanced directive protects the rights of the patients and takes the burden off of the family for the decisions made. Helping the patient to feel like an integral part of the decisions on how their care goes is important for their stages of acceptance in this process. Another key concept I have found with patients who feel that they are helpless in their illness, is to help with the grieving process. To assist with the 5 stages of grief it is important for them to be a part of the decision process if they can, because it can help them with acceptance of the disease process. So many things are taken away from a patient when they are diagnosed with a terminal illness. They are told from day one by the doctors and nurses what the course of their care is. The patients comply because they are seeking curative treatment, but when the patient decides they are finished with curative treatment, then they get to decide how their end of life should be if they have the time to do so. It is important for patients to be in the decision making process for all of their end of life issues if they want to. I worked with an ALS patient who decided what she was going to wear down to the jewelry after she passed. She also decided what everyone would eat and what music would be playing. Looking back on that experience and doing this assignment I can see that ALS took everything away from her and she needed to be in control of every aspect of her end of life arrangements. In the article strategies to help initiate and maintain end of life discussions. There are many aspects of different cultures that need to be respected and every person feels very strongly about what should happen, how it should happen and what should be done in the end of life. It is important that we honor what the patient and family want and that their wishes be respected. For example I worked with a patient where after the death of the patient we normally called the funeral home and the patient was prepared for death with embalming. This person’s religion was clear that she was not to be embalmed and she had to be buried the next day prior to a certain time. We made sure we managed the patient’s spiritual needs in a timely manner and the family had what they needed and what they knew the patient wanted. This was very important to them. The nurse’s role in end of life care is a teacher, to teach symptom management and comfort. The nurse is an advocate, to help the patient and assist in what she needs for end of life issues. For example with my work in hospice, I had a lymphoma patient that lived 22 years because of all the times she went in and out of remission and all she wanted to do was speak with her oncologist. We were able to get him on the phone and she talked with him and thanked him and said her goodbyes. It was something that was very important to her. I assisted with this, but in viewing all of the material for this class, I can see how important meeting end of life goals are for the patient. A role for nursing in end of life issues is also a collaborator. After we ask the patients what they need in place, such as advanced directives, MPOA, cultural preferences and basic wants and needs, it is imperative that we discuss issues with the care team to get the patient everything they need. This could include pastoral care for spiritual issues, care management so patient can have needs met at home. Hospice referral for at home medical equipment and symptom management, and any and all needs that are tailored to what the patient needs at that time. I remember I had a 34 year old single mother in hospice and I came to see her and she was on the floor crying surrounded by pictures. She had been there for hours and she was trying to get her photo albums and journals in place for her children before she died. It was very important to her that her children have a detailed photo book to look at to remember her by. My goal for her was to work on her journals and every visit we put her photos together and she did have that in place before she passed. Nursing can also aid family members with their acceptance of the disease process. Nurses can assist with the bereavement process and get the resources for the family that is needed. End of life care will have nurses utilizing all of their holistic skills. End of life care is different and personal for each individual patient. It is important to individualize our care and focus on what the patient needs, such as symptom management, and then what is important to the patient, such as familial or spiritual issues.

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