I. Executive Summary
Upendo Disabled Group is registered NGO with years of operational experience.
The Group has a vision of increase confidence of people with disabilities for their complete emancipation from inferiority complex and become responsible for their life in order to participate full in building the nation. The main goal is to build a society where disable will have equal opportunities to social economical and physical development to all level.
Upendo Disabled Group working with different stakeholders will address some of the factors causing killings of Albinos. The organization will provide Human right education to society to understand the nature of the problem and how to solve it.
The Project will help Albinos to be aware of their disability problem, how to overcome and build their skills to take control of their life. Upendo disabled group will prepare a film and distribute in different districts in lake regions. In that film the effect of stigma to Albino will be addressed. Also the community will be educated that Albino they can do many thing like those of normal person. The program will be broadcasted in different TV stations to attract more people.
Upendo disabled Group will conduct interventions using different approaches such as community outreach activities, group discussions between parents and Albino and establishment of active groups to reach the target. Upendo disable group has more than 3 years experience working together with disabled groups and individuals at grassroots level, this help the organization to know the root of the problem and best intervention needed to address the problem.

II. Problem statement
Albinism is an inherited condition present at birth, characterized by a lack of pigment that normally gives color to the skin, hair, and eyes. Many types of albinism exist, all of which involve lack of pigment in varying degrees. The condition, which is found in all races, may be accompanied by eye problems and may lead to skin cancer later in life. There are 10 types of the most common form of the condition, known as "oculocutaneous albinism," which affects the eyes, hair, and skin. In its most severe form, hair and skin remain pure white throughout life. People with a less severe form are born with white hair and skin, which turn slightly darker as they age. Everyone with oculocutaneous albinism experiences abnormal flickering eye movements (nystagmus) and sensitivity to bright light. There may be other eye problems as well, including poor vision and crossed or "lazy" eyes (strabismus). Albinism is an inherited problem caused by an alteration in one or more of the genes that are responsible for directing the eyes and skin to produce or distribute melanin, which is a photo protective pigment that absorbs ultraviolet (UV) light coming from the sun so that the skin is not damaged. Sun exposure normally produces a tan, which is an increase in melanin pigment in the skin. Many people with albinism do not have melanin pigment in their skin, do not tan with exposure to the sun, and as a result develop sunburn. Over time, people with albinism may develop skin cancers if they do not adequately protect their skin from sun exposure.
Melanin is also important in the eyes and brain, but it is not known what role melanin plays in those areas. Parts of the retina do not develop correctly if melanin pigment is not present during development. Also nerve connections between the retina and brain are altered if melanin is not present in the retina during development.
Albinism is an autosomal recessive disease, which means that a person must have two copies of the defective gene to exhibit symptoms of the disease. The child therefore inherits one defective gene responsible for making melanin from each parent. Because the task of making melanin is complex, there are many different types of albinism, involving a number of different genes.
People with albinism may experience a variety of eye problems, including one or more of the following: • They may be very far-sighted or near-sighted and may have other defects in the curvature of the lens of the eye (astigmatism) that cause images to appear unfocused. • They may have a constant, involuntary movement of the eyeball called nystagmus. • They may have problems in coordinating the eyes in fixing and tracking objects (strabismus), which may lead to an appearance of having "crossed eyes" at times. • They may have reduced depth perception due to altered nerve connections from the retina to the brain. • Their eyes may be very sensitive to light (photophobia) because their irises allow stray light to enter their eyes. It is a common misconception that people with albinism should not go outside on sunny days, but wearing sunglasses can make it possible to go outside quite comfortably.
One of the myths about albinism is that it causes people to have pink or red eyes. In fact, people with albinism can have irises varying from light gray or blue to brown. (The iris is the colored portion of the eye that controls the size of the pupil, the opening that lets light into the eye.) If people with albinism seem to have reddish eyes, it is because light is being reflected from the back of the eye (retina) in much the same way as happens when people are photographed with an electronic flash. In addition, albinism does not cause blindness.
Children with albinism may experience complex social problems because of their unusual appearance, especially when a member of a normally dark-skinned ethnic group has albinism. The eyes of children with albinism may move rapidly and not focus together, and the children may have to squint, tilt their heads, and hold reading materials close in order to see. These behaviors may result in the child being treated badly by peers. Modifications made for the children in the classroom and in physical education classes to compensate for low vision may make them feel even more isolated. Parents often feel that teasing and name-calling, insensitivity, and ignorance are the greatest challenges that they face with regards to their child's albinism. The support and love of these families of children with albinism are essential to helping the children understand and accept themselves. Support groups for the children and for their families, as well as counseling, may be useful for developing means of coping with the social effects of albinism.
Discrimination against albinos is a serious problem throughout Sub-Saharan Africa, but in Tanzania it has taken a sickening twists at least 19 albinos, including children, have been killed or mutilated in the past year. They are victims of what local officials say is a growing criminal trade in albino body parts.
Research shows witchdoctors are marketing albino skin, bones and hair as ingredients in potions that promise to make people rich. Many people in Tanzania and across Africa, for that matter believe albinos have magical powers. They stand out, often the lone white face in a black crowd, a result of a genetic condition that impairs normal skin pigmentation. Research shows witchdoctors are now marketing albino skin, bones and hair as ingredients in potions that are promised to make people rich.
III Conclusion/Way forwards
The Stigma to Albino is a big problem in our country. The finding from baseline assessment conducted by Upendo Disabled Group in 2008 showed that the problem is still grows fast. The evidence shows that still there are cases were by Albino are killed for witch craft believing. Upendo Disabled group sees that it is not easy for Albino to fight themselves without the hand from other stakeholders Because of their economic status this cause them more vulnerable.
Researches conducted by the organization shows that there is a need to establish a project that will address the issue of Albino rights prevention and general Health awareness to disabled. The project will provide Health education and build life skills of Albino to enable them to live the happy life. The project will prepare Human right awareness film in Video cassettes, DVDs and distributed in lake regions in Tanzania. Also the film will be broadcasted in special Programme in various TVs like TBC, ITV, STAR TV, CHANNEL TEN etc.
In order to achieve this vision Upendo Disable Group needs support of Tsh. 85,750,000/= (The breakdown shown in Table provided).

Appendix I: LOGFRAME (LOGICAL FRAMEWORK ANALYSIS)
|OUTCOMES (HIERACHY OF AIMS) |OBJECTIVELY VERIFIABLE INDICATORS |MEANS OF VERIFICATION |IMPORTANT ASSUMPTION |
|Goal: |10% of Albino in lake region acquire |50 Trained Community members | Availability of Funds |
|To reduce Stigma to Disable People |Health and life skills by December 2011 |conduct PRA in Lake regions by | |
|(Albino)through sustainable Primary | |December 2010 | |
|Health Care social support and | | | |
|behavioral change by December 2011 | | | |
|Purpose: |50 Community Members trained on PRA by |Facilitate post training follow |Availability of Funds |
|Community Based information sharing |December 2010 |up and evaluation by December | |
|system on Health and Human rights in | |2009 | |
|place and functioning by 2011 | | | |
|Outputs |50 Community members providing HEALTH and |Provide quarterly supportive |Availability of Funds |
|Facilitate Health and stigma training |stigma will peer in Lake regions by |visit to peer members | |
|to the identified 50 community members |December 2011 | | |
|by April 2010 | | | |
|Activity: |Prepare a training report by may 2010 |Identify 50 community volunteers |Availability of Funds |
|Identify 50 Community members to be | |to be trained by March 2010 | |
|trained by October 2009 |Making a film in which a massage of HEALTH| | |
|Facilitate PRA training to the |and stigma to disabled people involved by | | |
|identified 50 community members by |December 2009 | | |
|January 2010 | | | |
|Prepare a training report by February | | | |
|2010 | | | |
Appendix II: Monitoring and Evaluation Plan
|Results and Activities |Objective Statement |Objectively verifiable |Means of verifications |How to collect data |How frequently will the |
| | |indicators |(Data Source) | |data be collected |
|Outcome/Output |To reduce HEALTH problems |To have trained 50 community |Records of attendance |form to be filled with the|Monthly |
|Providing correct information |and stigma to Albino in |members volunteers in Lake |Focus groups proceedings |50 community members | |
|about HEALTH and stigma. |Lake region then to spread|region and others Lake |Evaluation reports |reports from Upendo & |Quarterly |
| |all over the country |regions | |Government officers | |
| |To Provide of the film and|The stigma to be reduce in | | |Annually |
| |distribute in Lake regions|Lake region | | | |
| |To reduce stigma and |Reducing of stigma and HEALTH|Focus group proceedings |Getting some reports from |Quarterly |
|ACTIVITY |HEALTH to Albino people |problems to Albino people |Upendo Disabled Group |venue for which seminars | |
|1.1 Mass media campaign to |To strengthen the Albino |Basic counseling knowledge |reports |will be conducted |Annually |
|community to introduce the |and community on HEALTH |The number of film | |The record of film be | |
|project (50 participants) |To enable Albino to be |distributed not less than 50%| |distributed in the | |
| |informed and make choice | | |District and regions | |
|1.2 Seminar of Community |on their life in order to |The education of HEALTH to | | | |
|members about HEALTH & Stigma |reduce HEALTH risk |Albino people be increased | | | |
|for 4 days (50 participants) |To show the community the| | | | |
| |effect of HEALTH and | | | | |
|1.3 Making a Film about stigma |stigma | | | | |
|and HEALTH to Albino | | | | | |
|Evaluation |To check how the project |To have special forms to be |From Evaluation report |Record of reporting forms |After 6 months |
| |going on if successful or |filled | |collected | |
| |not | | | | |

Appendix III Training / Workshop Plan

|Objectives Training |Outline of topics to be |Training Methodology to be |Target Group |Selection Criteria for |Transfer of Learning strategy|
|Workshop |covered |used | |Participants | |
|To Educate the Effect of |Who are Albino |Group Discussion |Albino people |30 Albino from Upendo Disabled |Produce a film and |
|HEALTH and Stigma to |How is Albino HEALTH problem | | |Group |distributed in Lake regions |
|Albino people and to the | |To use video cassettes |General Community |10 local leaders |To make Promotion in Lake |
|surrounding community |3. What is Stigma | | |10 active stakeholders in fight|regions |
| | |Giving Handouts to | |for HEALTH and stigma |Making Broadcasting |
| |4. How to take care of |participants | | |Programmes in TVs |
| |Albino? | | | |using peer Educations and |
| | |Using Promotion methods | | |seminars |
| | |(Drama) | | | |
| | | | | | |
| | |Roll Play | | | |

Appendix IV THE BUDGET OF MASS MEDIA COMPAIN – INTRODUCTORY MEETING
|S/N |Activity and Inputs |Unit cost |Number of units |Days |Year 1 |
| | | | | |Total |
|A |Mass Media campaign to leaders & community to| | | | |
| |introduce the project | | | | |
| |Inputs for day: | | | | |
| |Stationeries | | | | |
|1 |Cold Drinks & Bites |6000/= |150 | |900,000/= |
|2 |Transport of participants |1600/= |50 |20 |1,600,000/= |
|3 |Hall hiring |1000/= |50 |20 |1,000,000/= |
|4 |Facilitators |250,000/= |1 |20 |5,000,000/= |
|5 | |100,000/= |2 |20 |4,000,000/= |
| |Sub Total Costs | | | |12,500,000/= | Appendix V THE BUDGET OF MAKING FILM
|S/N |ACTIVITY |THE NEEDS THE PROJECT | |
| |PREPARATION COSTS |Description |NO OF DAYS |NO OF PARTICIPANTS|@ TSHS |Total AMOUNT |
|1. |Starling |Allowance | |6 |1,000,000/= |6,000,000/= |
|2. |Middle Players |Allowance | |9 |800,000/= |7,200,000/= |
|3. |Other Key Players |Allowance | |5 | |2,000,000/= |
|4. |Group Players |Allowance | |30 | |3,000,000/= |
|5. |Buying some Material |5. Clothes & Decorations | | | |3,350,000/= |
| | |SUB TOTAL COSTS | | | |21,550,000/= |
|6. |Housing Rent for film |10 Houses in different Place | |10 |150,000/= |1,500,000/= |
| | |SUB TOTAL COSTS | | | |1,500,000/= |
|7. |Hiring some vehicles |Toyota Hiace and fuel |20 |1 |100,000/= |1,000,000/= |
| | |Benz, Prado |5 |5 |100,000/= |2,500,000/= |
| | |Tax |10 |1 |50,000/= |500,000/= |
| | |SUB TOTAL COSTS | | | |4,000,000/= |
|8. |Recording and Editing (Production |I. Cameraman | | | |1,500,000/= |
| |House) |II. Director | | | |1,500,000/= |
| | |III. Editor | | | |800,000/= |
| | |IV. Casting Director | | | |300,000/= |
| | |V. Flow Manager | | | |500,000/= |
| | |VI. Script Writer | | | |800,000/= |
| | |SUB TOTAL | | | |5,400,000/= |
|9. |Lunch and Refreshment During recording |Foods & Drinks |20 |35 |3600/= |2,520,000/= |
| |days | | | | | |
| | |SUB TOTAL COSTS | | | |2,500,000/= |
|10. |Trip to Mwanza | | | | |3,300,000/= |
| | |SUB TOTAL COSTS | | | |3,300,000/= |
|11. |Production of film & Broadcasting | | | | |35,000,000/= |
| | |SUB TOTAL COSTS | | | |35,000,000/= |
| | |TOTAL COST | | | |73,250,000/= |
| | |PLAN OF OPERATIONS | | |
|OUTCOME |ACTIVITY |2008 |2009 |2010 |Who is Responsible |Total Costs |
| | |Qtr. 3 |Qtr. 4 |Qtr.1 |

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UPENDO DISABLED GROUP

PROJECT PROPOSAL

Project Title: HUMAN RIGHTS PROJECT FOR ALBINO

Contact Person: Renatus Ng’halambi P. O. Box 67115, Dar es Salaam Mobile: 0755 350078

Project Site: Lake Regions

Project Duration: Two years

Total Project Cost: Tshs 85,750,000/=

Date of Submission: OCTOBER 2008

C