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Stakeholder

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MISSION

To connect people with trusted breast cancer information and a community of support.

VISION

A world where no one impacted by breast cancer feels uninformed or alone.

HISTORY & COMMUNITY SERVED

LBBC was founded in 1991 by radiation oncologist Marisa C. Weiss, MD, in response to a woman's need for breast-cancer-related information, connection and support after completing treatment. In our early years, Dr. Weiss ran LBBC out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer, and LBBC focused exclusively on the post-treatment experience. In 1996, Jean A. Sachs, MSS, MLSP, became Living Beyond Breast Cancer’s first executive director (now chief executive officer). Ms. Sachs has increased LBBC’s budget from $100,000 to more than $4 million per year, increased the size of the staff and expanded our programs and services.
Today, LBBC has expanded to assist women at all stages of diagnosis, treatment and recovery. Our mission includes offering specialized programs and services for the newly diagnosed, young women, women with advanced breast cancer, women at high risk for developing thedisease, and African-American women. We also offer programs for caregivers and healthcare professionals to help them better meet the needs of women affected by breast cancer.

BOARD OF DIRECTORS

Barbara Yorke – Chair
Retired Executive

Denise Portner – Vice Chair
Senior Vice President, SteegeThomson Communications

Philip M. Browne – Treasurer
Managing Director, Finance and Administration, Franklin Square Capital Partners

Beth L. Haas, Esq. – Secretary
Associate Teaching Professor, Earle Mack School of Law, Drexel University

Phyllis Allen, Esq.
Breast Cancer Outreach Volunteer

Annemarie Armstrong
Managing Director, Saatchi & Saatchi Science

Andrea M. Barsevick, Ph.D.
Professor, Thomas Jefferson University

Lauren Bolen
Pharmaceutical Industry Consultant

Jim Boudreau, J.D.
Shareholder, Greenberg Trauig, LLP

Lyn Fitzgerald
Vice President, U.S. and Global Development, National Comprehensive Cancer Network

Theresa L. Frangiosa
Principal and CEO, Frangiosa and Associates, Healthcare Strategy

Byron Hewett
Chief Executive Officer, SomaLogic

Kathleen Kovach
Senior Organizational Development Business Partner, Independence Blue Cross

Kimberly Kubek, M.D.
Director of Imaging, Diagnostic Breast Center

Amy Lessack
Director, ABC University, AmerisourceBergen

William C. Luff
Production Manager, Temple Performing Arts Center, Temple University

Lynn Marks
Executive Director, Pennsylvanians for Modern Courts

John McDonald, Esq.
General Counsel, Toll Brothers

Jonathan Petrakis, Esq.
Partner, Duane Morris LLP

Moira Rooney
Director of Strategic Investment, Mission First Housing Corporation

Lisa Schildhorn, RDH, BS, MS
Executive Director, Pennsylvania Coalition for Oral Health

Todd L. Sherman, CIMA
Family Wealth Director, Sherman Sobin Wealth Management Group, Morgan Stanley Smith Barney

Nivedita Singhal
Director Finance, Pricing, Allied Barton

Susannah Wolf, MS
Math Resource Teacher, Park School of Baltimore

Margaret Zuccotti, M.Ed.
Creator of Reading for Reassurance

PROFESSIONAL STAFF

Jean A. Sachs, MSS, MLSP, Chief Executive Officer

Joanne Bursich, Chief of Staff

Janine E. Guglielmino, MA, Director, Programs and Strategic Initiatives

Sandy Martin, Vice President, Advancement

Catherine L. Ormerod, MSS, MLSP, Vice President, Programs and Partnerships

Celeste C. Terrinoni, CPA, Director of Finance and Administration

Kevin Gianotto, Associate Director, Marketing and Corporate Relations

Amy B. Grillo, Associate Director, Educational Programs

Arin Ahlum Hanson, MPH, CHES, Manager, Young Women’s Initiative

Kathy Arocho, Administrative Assistant

Lindsay Beckmeyer, Marketing and Public Relations Coordinator

Josh Fernandez, Writer and Web Content Coordinator

Lynn Ann Folkman, CMP, Manager, Community Engagement

Catherine Creme Henry, Outreach Coordinator

Dominique Holland, Administrative Coordinator

Nicole Katze, MA, Editor and Manager, Publications

Vicki Klopp, Development Coordinator

Claudia Lilley, MPH, Program Coordinator

Mary Beth Mills, MS, Manager, Annual Giving

Erin Rowley, Writer and Editorial Coordinator

Brittaney Shade, Special Events Coordinator

Anna Shaffer, Editor and Manager, Web Content

Christine A. Ware, MEd, Manager, Database Information and Technology

SOURCES OF REVENUE

INDIVIDUALS, CORPORATIONS, & FOUNDATIONS

$2.25 MILLION GRANT FROM THE NATIONAL PHILANTHROPIC TRUST

$1.75 MILLION GRANT FROM CENTER OF DISEASE CONTROL

ANNUAL GALA RAISES MORE THAN $550, 000 PER YEAR

MEMBERS HAVE INCREASED FROM 8,000 TO 40,000

“90 percent of Living Beyond Breast Cancer’s programming is supported directly by gifts from generous individuals, community partners and companies.”

MARKETING LITERATURE

RECEIVED 4 STAR EXCEPTIONAL RATING FROM CHARITY NAVIGATOR

INSIGHT: NEWLETTER ISSUED QUARTERLY

GUIDES TO UNDERSTANDING BREAST CANCER AND METASTATIC BREAST CANCER SERIES

ONLINE LBBC BLOG

ANNUAL FALL CONFERENCE HELD AT THE PENNSYLVANIA CONVENTION CENTER

FACEBOOK, TWITTER, YOUTUBE, PINTREST

PROGRAMS

Website: www.lbbc.org

A place where easy to understand information and resources can be found in written, audio and video formats.

Breast Cancer Helpline:
(888) 753-LBBC (5222)* www.lbbc.org/helpline

Women volunteers with a personal history of breast cancer offering emotional support and practical information through a confidential exchange.

“Our Breast Cancer Helpline is staffed by volunteers who have been personally affected by breast cancer and LBBC staff members who have been trained to answer calls. The information provided is not a substitute for professional counseling or medical advice. Breast Cancer Helpline volunteers and staff are not authorized to provide, and will not provide, counseling, medical or legal advice.”

SERVICES

Conferences www.lbbc.org/conferences National events providing information in large sessions and interactive workshops led by breast cancer experts to help you and caregivers make informed decisions.

Webinars www.lbbc.org/webinars Monthly education seminars, accessible by phone or online, highlighting specific topics related to breast cancer.

Community Meetings www.lbbc.org/meetings Small, regional gatherings bringing experts, women and families together for information and interaction on subjects of interest.

LIVING BEYOND BREAST CANCER
354 West Lancaster Ave., Suite 224
Haverford, PA 19041

Phone: (610) 645-4567 Email: mail@lbbc.org Fax: (610) 645-4573

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