...Palliative care has a board definition that includes caring for patients with life-threatening illnesses by relieving pain and other distressing symptoms that focuses on using an interdisciplinary approach that also addresses psychosocial and spiritual guidance. Most importantly it promotes a team involvement in caring for a person with chronic health illnesses. It is important to stress that palliative care is not intended to hasten or postpone death (WHO, 2017). As the disease process progresses, hospice care becomes an easier option for patients and family members to accept. Hospice care includes palliative care because it is focused on keeping the patient’s life as comfortable as possible. It is designed to provide care for the last six...
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...Palliative and End of Life Care provide a holistic approach to care for those who are suffering from illnesses with a poor prognosis. It focuses on symptom management in an effort to improve quality of life (Ranallo, 2017). This approach to care for pediatric oncology patients with a terminal prognosis is not focused on a cure, rather emphasizes comfort when the patients and their families need it most. Various research studies explain the importance of initiating Palliative and End of Life Care early after the patient’s diagnosis. Given nurses’ roles, they have the opportunity to help provide this care. The purpose of this paper is to discuss ways to improve the quality of life of pediatric oncology patients through nurses helping to facilitate...
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...to mark the occasion of World Hospice and Palliative Care Day. The rally consisted of the president of Ashic Foundation Salma Choudhury, AVC volunteers, who are students from various universities and schools, and the parents of the children present in the Foundation. The rally started from the Ashic Palliative Care Unit (PCU) in Dhanmondi 3/A and went up to City College. Again, the rally began from Dhaka National Museum and continued all the way across University of Dhaka to the Press Club where members from the Bangladesh Cancer Society joined in the event. AVC achieved its purposes of creating a human chain and rallying on the streets on that very day. AVC wanted to share its vision of increasing the availability of hospice and palliative care throughout Bangladesh by creating opportunities to speak out about the issues involved. The second aim was to raise awareness and understanding of the needs – medical, social, practical, spiritual – of disease-stricken people and their families. The third was to raise funds to support the cause. While the rally was on, many took interest and AVC volunteers exchanged meaning conversations with countless people – stating the dire importance of better hospice and palliative care in Bangladesh, demonstrating how every single person can be of great help by contributing even little, giving away informative leaflets, etc. This rally was a motif to celebrate and support hospice and palliative care in Bangladesh. For the AVC, although everyday...
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...20 years of age die from life threatening diseases (Carter et al., 2004). So, what exactly is being done to help these children get through the endless treatments and to understand that death is a very real possibility in their future? Who is helping the loved ones who survive the sick child move on with their lives and deal with their loss? Pediatric palliative care nurses play a big part in helping sick children and the families of the children who do not make it get through this difficult situation. A team of medical professionals work along with the palliative care team to help the family and the sick child understand what is happening and to decide the best course of action for everyone...
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...Franciscan Hospice and Palliative Care Cindra Jones BSHS301 September 29, 2012 Christopher Bingham FRANCISCAN HOSPICE AND PALLIATIVE CARE I chose Franciscan Hospice and Palliative Care because I am interested in the valuable service they provide to the community. I wanted to know exactly what they do and how it is paid for so I made an appointment to talk to someone at the Franciscan Hospice and Palliative Care facility. Hospice is care designed to give supportive care to people in the final phase of a terminal illness and focus on comfort and quality of life, rather than a cure. The word “hospice” comes from the Latin “hospitum” meaning guesthouse. It was originally a place of shelter for sick and weary travelers. Palliative care is the treatment and relief of mental and physical pain for those with a life threatening illness. This treatment uses several types of therapy to make a person comfortable and free of pain. I was very fortunate to meet Pam Ketzner, the hospice educator and registered nurse at the Franciscan Hospice and Palliative Care facility located in University Place, Washington. Pam is in charge of educating the hospice nursing staff. With new equipment and medications always becoming available, she instructs the nurses on their proper use. She has been a nurse for 35 years. She was a visiting nurse to begin with and then became the head of education so she spends most of her time at the facility. She feels very privileged to be a part of...
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...Introduction Palliative care is given to provide a comfortable environment for the patient who is dying and to improve quality of life by giving care to terminally ill patient. Palliative care is given to patient in relation to their cultural practices and spiritual needs (Davis and Kuebler, 2007) as the perceptions of a person about health and illness is defined by the cultural beliefs and values which are practiced in society (McGrath et al., 2006). Cultural diversity among various cultures is dependent upon belief system of people regarding death and dying (Clark, 2010). The following article has been focused on the role of different cultures and beliefs in palliative care and how nursing care would work in multicultural societies. Content...
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...Understanding Palliative Care and the Transition from Hospital to Home "Palliative" is a word that means to soothe or relieve. "Palliative care" refers to a team of specialists working together to offer comfort and support to people with serious health-related issues outside of the hospital setting. Palliative care is often confused with hospice care since the two offer very similar services. The biggest difference lies in the time the services are offered, the eligibility for the services and the payment options available. With palliative care, there are no time restrictions on services and they can be received at any time. Since the services are not related to terminal illness, parallel curative-services are available as well. Palliative care is available for patients of any age and with any medical condition. Some of the most common conditions are cancer; heart, kidney or liver disease; dementia and multiple injuries requiring long-term care. Studies have concluded that effective and timely palliative care not only increases a person's quality of life and...
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...Palliative care is defined as patient and family-centered care that enhances the quality of life through prevention and relief of suffering associated with life-limiting illness or injury. Care is provided through the continuum of the holistic approach to person-centered care that includes terminally ill patients and their families. The module provided by Stanford School of Medicine highlights all the important aspects of palliative care and services. It also explains the necessity of the involvement of interprofessional team, including physicians, nurses, social workers, and many other healthcare professionals. A team approach is required in order to recognize and address the extent needs of patient and family. The module provides an excellent...
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...Introduction Palliative care (PC) provides a better comprehensive health care for patients with cancer and their families. Supportive care, pain management and symptom control at the end of life are valuable and common services provided by the PC team (World Health Organization [WHO], 2002). However, there are many challenges and barriers for PC in developing countries such as: health care and public literacy about PC, opioid phobia, policies and regulations to access and prescribe opioid, limited resources and adequate education and training (Bingley & Clark, 2009). The presence of these problems plays a major role in providing suitable and accessible symptom management for many oncology patients. In Saudi Arabia, between 2007 and 2011,...
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...Palliative Care Jennifer Cashon McKendree University This article explores the concept and role of hope in children’s palliative care, the ethical and legal issues that affect the reality of giving hope to families and the implications for practice. The death of a child in Western society is an unnatural event that no parent ever expects to experience. The best children’s palliative care is defined as an active and total approach to care, from the point of diagnosis or recognition, throughout the child’s life, death and beyond. It embraces physical, emotional, social and spiritual elements, and focuses on the enhancement of quality of life for the child and support for the family. The articles discusses how hope is essential for the families and that there is a strong link between hope and quality of life. Hope is considered an effective coping strategy in dealing with serious illness. Also, the way in which staff communicate with families will undoubtedly affect whether they allow the preservation of hope. A questionnaire was administered to nurses and doctors about what they perceived as barriers when introducing the idea of palliative care for children to families. The most common obstacle identified was uncertain prognosis. The second most common barrier was that the family members were not ready to acknowledge that their child might have an incurable condition. The fact that parents may not be ready to acknowledge that their child has an incurable condition or...
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...Dementia and Palliative Care Thomas Edison State College Introduction According to the Palliative Medicine article “global prevalence of dementia is almost 36 million people and the numbers are expected to double every 20 years (Ryan, Gardiner, Bellamy, Gott & Ingleton, 2011). With this in mind, in seems dementia is just as prevalent as cancer but these patients do not seem to receive the same end of life care or palliative care. The World Health Organization defines palliative care as An approach that improves quality of life in patients and families facing problems associated with life threatening illness, through prevention and relief of suffering by means of early identification, impeccable assessment and treatment of pain and the problems with physical, psychosocial and spiritual. ("Who definition of," 2013) The two article summaries that follow will help healthcare staff understand the great need for palliative care in dementia, from the diagnosis to death. Annotated Bibliography Ryan, T., Gardiner, C., Bellamy, G., Gott, M., & Ingleton, C. (2011). Barriers and facilitators to the receipt of palliative care for people with dementia: The views of medical and nursing staff. Palliative Medicine, 26(7), 879-886. doi: 10.1177/0269216311423443 Tony Ryan and colleagues discuss how “people with dementia often receive too little care whereas end of life care is often characterized by too much” (Ryan, Gardiner, Bellamy, Gott &...
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...Palliative care is defined as Palliative care nurses are at risk of work stress because their part includes contact to frequent deaths and family grieving. Based on the definition of Palliative care, one can recognize that palliative care nurses are prone to high levels of stress and burnout increased instances of stress and burnout. Palliative care nurses envisioned to develop the quality of life for both patients suffering a serious disease or at end of life and their families There are many causes of stress and loss among palliative care nurses: poor prognosis of the patient, complication of disease condition, dealing with death and dying, uncooperative patient and the family members. Palliative care nurses facing the above causes are disposed to high levels of stress and burnout. According to dealing with death and dying and dealing with uncooperative family members and patients have all been found to be stressors experienced by nurses. As mentioned in Palliative care nurses experience many stressors in their workplace that rise their stress levels and burnout. Stress can be viewed as The main stressors cause to the palliative care nurses providing end life care, Because they deal with advanced progressive disease, which is defined as The advanced progressive disease leads to death. states These causes’ stressors to palliative care...
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...The Effects of Palliative Care on Other Family Members Tonya Kerney McKendree University The Effects of Palliative Care on Other Family Members Family members of patients who are in palliative care experience emotions including hopelessness, guilt, and sadness. They are often physically exhausted and may become ill themselves. Many experience depression. Family Caregiver Alliance (as cited in McMillan et al., 2006) has estimated that over fifty million Americans assist a family member with a disability or illness on a regular basis. Of these ill patients, many require extensive care from family members. Caregivers of cancer patients especially experience very high stress levels. They are often burdened with physical exhaustion, emotional distress, and financial worries from loss of time at work to care for their loved one (Emanuel & Emanuel, as cited in McMillan et al., 2006). The purpose of the study I reviewed was “to determine whether hospice plus a coping skill training intervention improved family caregivers’ quality of life, burden, coping, and mastery, compared with hospice plus emotional support and usual hospice care (McMillan et al., 2006, p. 214)”. To participate in the study, caregivers had to be caring for adult cancer patients, both had to give consent, both had to be able to read and comprehend English, both had to have achieved at least a sixth grade education, and both had to achieve a minimun score of seven on the Short Portable Mental Status Questionnaire...
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...during palliative care enhances the course of treatment and can improve patient outcomes. The goal of this paper is to demonstrate in palliative care patients, what is the effect of withdrawing enteral nutrition compared to continuing enteral nutrition on quality of...
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...Palliative care for oncology patients is increasingly being linked to longer survivor periods, increasing life expectancy (Smith, 2012). A national cancer publication reports upto 17,000 patients will now survive cancer for a minimum of 5 years post-diagnosis. Oncology palliative care is for patients facing end of life due to a cancer diagnosis. Palliative care is not exclusive to treatment within the final days of life and can encompass time periods spanning years. Many of the patients in oncology palliative care suffer from cancer-related fatigue. Upto 90% of oncology patients suffer at some stage (campos, 2011). Unlike symptoms of cancer-related pain, fatigue cannot be treated solely with pharmacological drugs and non-pharmacological interventions...
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