...14 Number 1 March 2009 61-80 http://www.nova.edu/ssss/QR/QR14-1/blanchard.pdf Lived Experiences of Adult Children Who Have a Parent Diagnosed with Parkinson’s Disease Amy Blanchard, Jennifer Hodgson, Angela Lamson, and David Dosser East Carolina University, Greenville, North Carolina Little is known about the experience among adult children who have a parent with Parkinson’s Disease (PD). The purpose of this study was to explore, appreciate, and describe their experiences using a phenomenological methodology. Narratives were collected from seven participants who have a parent diagnosed with PD and analyzed according to Colaizzi’s (1978) phenomenological data analysis method. Seven thematic clusters were identified and an exhaustive description is presented to summarize the essence of their lived experience. The study indicates a strong sense of essential positivism from the participants’ stories, and overall, it seems PD has brought some degree of biological, psychological, socially, and/or spiritual meaning to their lives that they may not have otherwise noticed or experienced. Key Words: Parkinson’s Disease, Phenomenology, Biopsychosocial-spiritual, Adult, Children and Illness Introduction “The bond between mother and child is so deeply rooted in our emotions that we fear to discuss openly anything that threatens the bond” – Glenna Atwood (1991) Establishing links between chronic illnesses and family impact are not novel (e.g., Cooke, McNally, Mulligan, Harrison, & Newman...
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...Medicine 58 (2004) 1647–1657 Understanding breast cancer stories via Frank’s narrative types Roanne Thomas-MacLean* Dalhousie University Family, Medicine Teaching Unit, Dr. Everett Chalmers Hospital, P.O. Box 9000, Priestman St. Fredericton, NB Canada E3B 5N5 Abstract While breast cancer narratives have become prevalent in Western culture, few researchers have explored the structure of such narratives, relying instead on some form of thematic analysis based upon content. Although such analyses are valuable, Arthur Frank (The Wounded Storyteller, The University of Chicago Press, Chicago, 1995) provides researchers with an additional means of studying stories of illness, through the examination of their structures. In this article, the author applies Frank’s work to a phenomenological study of embodiment after breast cancer. Frank’s three narrative types are used to enhance understanding of the ways in which stories are culturally constructed, using data collected through one focus group discussion and two in-depth interviews with each of 12 women who had experienced breast cancer. The author then conveys the significance of this form of analysis for future research. r 2003 Elsevier Ltd. All rights reserved. Keywords: Breast cancer; Qualitative and narrative Introduction Frank (1995) writes that those who are ill ‘‘need to become storytellers in order to recover the voices that illness and its treatment often take away’’. (p. xii) Frank’s ideas are supported...
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...Richard Russo’s memoir, Elsewhere, provides a son’s narration of a lifetime of adventures and tribulations with his mother, Jean. The piece also provides an ideal case study of development, experiences, challenges, and transitions across the adult phases of the human lifespan, thereby allowing for an application and analysis of adult psychology theories and concepts that are commonly presented in more objective and less narrative works. First, attention will be paid to the roles and relationships that Richard and Jean Russo establish throughout their lives. Then, cognitive aging and decline will be discussed in relation to Jean’s physical and mental health and her dementia. Richard’s role as Jean’s primary caregiver will be studied through...
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...MY LEARNING PORTFOLIO- How I apply learning experiences in my life Abstract Until early last century Pedagogy was widely advocated as the foundation of all education, irrespective of the age group or subject area being taught. The word itself is from ancient Greek ‘paidagageo’ meaning literally ‘to lead the child’. Rote learning was a small part of pedagogy, which conditioned the learner for a known outcome or answer, however one in which there was no variables. It wasn’t until the two World Wars and the industrial revolution, that the practice of adult teaching became accepted as having different methodologies from pedagogy. Many adults that undertake learning do so in the knowledge that they bring different life experiences into the medium, however these experiences can draw in environmental and motivational factors that could become barriers in the absorption of the content. Elton, M (1949) and his studies into the Hawthorn experiments conducted from 1924-1932, provides an example of the increase in productivity (learning or motivation) being attributed to the interest being shown in the individual. From my limited experience within an adult learning environment, I see the Hawthorn effect as a practice example of adult learning, whereby the tutor (employer) engages with, shows interest in and motivates the individual for productivity or knowledge gains. In centuries past, the learning experience was very much one-way communication, however with the advent of adult...
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...Trials Research Unit, University of Leeds, Leeds, England, UK Correspondence to Karen Spilsbury: e-mail: ks25@york.ac.uk 6 5 4 3 2 1 SPILSBURY K., NELSON A., CULLUM N., IGLESIAS C., NIXON J. & MASON S. ( 2 0 0 7 ) Pressure ulcers and their treatment and effects on quality of life: hospital inpatient perspectives. Journal of Advanced Nursing 57(5), 494–504 doi: 10.1111/j.1365-2648.2006.04140.x Abstract Title. Pressure ulcers and their treatment and effects on quality of life: hospital inpatient perspectives Aim. This paper reports a study exploring patients’ perceptions and experiences of the impact of a pressure ulcer and its treatment on their health and quality of life. Background. Pressure ulcers are a significant health problem, and their prevention and management in primary and secondary care is high on the clinical and policy agenda. However, patients’ perspectives and experiences of the impact of pressure ulcers on health and quality of life is not understood. Method. Qualitative semi-structured interviews were carried out from 2002 to 2004...
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...manuscript of her autobiography, Edith Wharton describes how reading this uncanny story occasioned a relapse, which brought her, once again, “on the point of death”: This one [book] brought on a serious relapse, and again my life was in danger and when I came to myself, it was to enter a world haunted by formless horrors. I had been a naturally fearless child; now I lived in a state of chronic fear. Fear of what? I cannot say — and even at the time, I was never able to formulate my terror. It was like some dark undefinable menace forever dogging my steps, lurking, threatening; (pp.275‑6).[1] According to Wharton, an act of reading plunged her body back into fatal illness. The young Edith Wharton did recover from the relapse, but its uncanny effects continued to haunt her well into adulthood. In “Women and Madness: the Critical Phallacy” (1975), Shoshana Felman tells another uncanny story of reading. Analyzing the critical commentary that brackets Balzac’s Adieu in a Gallimard/Folio pocket edition, she demonstrates how two scholars, Pierre Gascan and Patrick Bertier, effectively rewrite Balzac’s story by focusing their analyses entirely on a section of historical backstory – despite the fact that this element comprises but one-third of Balzac’s narrative.[2] In...
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...Insights into OTC and Pharmacy as presented at the ESOMAR Global Healthcare Conference Contents Consumer Decision Making: 4 “How potent is my potion?” Intuitive judgments in consumer decision making for OTC products - By Anjali Puri, Director, Customized Products & Services Group, Asia Pacific and co-author, Sumeet Saluja, General Manager, Marketing at Glaxo SmithKline Consumer Healthcare Fast Moving Consumer Goods and OTC products: Zoom on marketing effectiveness - Abstract by Erk Maassen, and Robert Buckeldee 20 2 Author: Anjali Puri Director, Customized Products & Services Group, Asia Pacific The Nielsen Company 2nd Floor, Block B, Sri Rama Deevana, No. 21, Ulsoor Road, Bangalore – 560042, India email: anjali.puri@nielsen.com Phone: 91-80-25559692, 91-98456-18854 Fax: 91-80-25559688 Anjali currently works with the Customized Products and Services team at Nielsen. She has over 14 years of qualitative research experience, and has worked extensively in the arena of OTC medication. Anjali is a regular presenter at ESOMAR and other international market research forums. Sumeet is currently the Category Head for Horlicks, health food drink company General Manager, Marketing in India. In his previous role, Glaxo SmithKline Consumer Healthcare Sumeet was head of the DLF Plaza Tower, DLF Phase 1, Gurgaon, Crocin brand, a popular OTC Haryana, India analgesic in India. Sumeet email: sumeet.g.saluja@gsk.com has also spent time in sales Phone: 91-124-2540700,...
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...The purpose of this assignment is to discuss how the module content and practice experience has contributed to my development as a nurse. It will involve reflecting on a particular episode of care delivery to a patient by me and my nursing mentor whilst on my 5 week placement and how I felt that the Foundation to nursing practice module helped equip me with both the knowledge and skills. In education for health-care professions it is recognised as an essential tool for helping students to make links between theory and practice and enables you to develop your knowledge and skills towards becoming a professional. Reflective practice is noted as being fundamental to development as a professional. To protect anonymity and maintain confidentiality the patient focused on this assignment will be known as patient A, furthermore consent was gained from patient A and they were provided with clear information on what would be included in this assignment and where informed that no recognisable information would be given, this is done in accordance with the Nursing & Midwifery Councils Code of Professional Conduct (2002) guidelines. Nursing assessment is considered to be the first step in the process of delivering individualised nursing care which is defined by A Dictionary of Nursing (2008) as care that is planned to meet the particular needs of one patient, as opposed to a routine applied to all patients suffering from the same disease. Every person...
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...stresses of life, work productively and fruitfully, and make a contribution to the community. * Mental Illness- maladaptive responses to stressors from the internal or external environment, evidenced by thoughts, feelings, and behaviors that are incongruent with the local and cultural norms, and interfere with the individuals social, occupational and or physical functioning. * Anticipatory grief-when a loss is anticipated, individuals often begin the work of grieving before the actual loss occurs. * Bereavement overload- this is particularly true for elderly individuals who may be experiencing numerous losses- such as spouse, friends, other relatives, independent functioning, home, personal possessions, and pets in a relatively short time as grief accumulates a type of bereavement overload occurs which for some individuals presents an impossible task of grief work. * Ego defense mechanisms-defense mechanisms employed by the ego in the face of threat to biological or psychological integrity identified by Anna Freud 1953. Some of these are more adaptive than others, but all are used either consciously or unconsciously as protective devices for the ego in an effort to relieve mild to moderate anxiety. * Projection: Attributing feelings or impulses unacceptable to one’s self to another person. * Undoing: Symbolically negating or canceling out an experience that one finds intolerable. * Solation: Separating a thought or memory from the feeling, tone, or emotion...
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...options would you recommend regarding these areas of functioning and why? WAIS IV RESULTS: VERBAL COMPRENSATION: 115 PERCEPUAL REASONING: 124 WORKING MEMORY: 110 PROCESSING SPEED: 128 RORCHACH RESULTS: 1. A bug. That’s it. W F+ AD(ANIMAL DETAILS) 2. A dead bug. … be it’s bleeding. That’s it. W FMC (SPECIAL PHENOMENUS=BLOOD) 3. A praying mantis, it’s got the big eyes in the center. Legs come in from the sides. WF+ (AD ANIMAL DETAILS) 4. A woman giving birth, her feets are up, and the baby’s coming out. That ‘s what I looked like when I gave birth. WM 5. A butterfly. WF+ POPULAR 6. Ones of those animal skins that’s been flatted out. WF+ POPULAR 7. Pelvic bone. It ll the x-ray when I stress fractured my pelvic...
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...others. But we must first be willing to devote ourselves to our personal growth and development as leaders. Discovering Your Authentic Leadership by Bill George, Peter Sims, Andrew N. McLean, and Diana Mayer Reprint R0702H We all have the capacity to inspire and empower others. But we must first be willing to devote ourselves to our personal growth and development as leaders. Discovering Your Authentic Leadership COPYRIGHT © 2007 HARVARD BUSINESS SCHOOL PUBLISHING CORPORATION. ALL RIGHTS RESERVED. by Bill George, Peter Sims, Andrew N. McLean, and Diana Mayer During the past 50 years, leadership scholars have conducted more than 1,000 studies in an attempt to determine the definitive styles, characteristics, or personality traits of great leaders. None of these studies has produced a clear profile of the ideal leader. Thank goodness. If scholars had produced a cookie-cutter leadership style, individuals would be forever trying to imitate it. They would make themselves into personae, not people, and others would see through them immediately. No one can be authentic by trying to imitate someone else. You can learn from others’ experiences, but there is no way you can be successful when you are trying to be like them. People trust you when you are genuine and authentic, not a replica of someone else. Amgen CEO and president Kevin Sharer, who gained priceless experience working as Jack Welch’s assistant in the 1980s, saw the downside of...
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...inspire and empower others. But we must first be willing to devote ourselves to our personal growth and development as leaders. Discovering Your Authentic Leadership by Bill George, Peter Sims, Andrew N. McLean, and Diana Mayer Reprint R0702H We all have the capacity to inspire and empower others. But we must first be willing to devote ourselves to our personal growth and development as leaders. Discovering Your Authentic Leadership by Bill George, Peter Sims, Andrew N. McLean, and Diana Mayer COPYRIGHT © 2007 HARVARD BUSINESS SCHOOL PUBLISHING CORPORATION. ALL RIGHTS RESERVED. During the past 50 years, leadership scholars have conducted more than 1,000 studies in an attempt to determine the definitive styles, characteristics, or personality traits of great leaders. None of these studies has produced a clear profile of the ideal leader. Thank goodness. If scholars had produced a cookie-cutter leadership style, individuals would be forever trying to imitate it. They would make themselves into personae, not people, and others would see through them immediately. No one can be authentic by trying to imitate someone else. You can learn from others’ experiences, but there is no way you can be successful when you are trying to be like them. People trust you when you are genuine and authentic, not a replica of someone else. Amgen CEO and president Kevin Sharer, who gained priceless experience working as Jack Welch’s assistant in the 1980s, saw the downside of GE’s cult of...
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...the severity of any complications from this disease. Generally, there are three main types of diabetes. It includes Type 1 diabetes (juvenile diabetes), Type 2 diabetes, and gestational diabetes (during pregnancy). Type 1 diabetes (Insulin Dependent Diabetes Mellitus) should consume insulin daily in order to survive. Meanwhile, type 2 diabetes (Non-Insulin Dependent Diabetes Mellitus) is the most common type of diabetes. Whereas, gestational diabetes is another type of diabetes where there is a high blood sugar level which is diagnosed during pregnancy. Diabetes Mellitus which is a well-known chronic illness requires a comprehensive of medical care by the expertise team. The risk of long term complications needs full support from various professionals to conduct diabetes care. Acute complications can be prevented via ongoing patient self-management education and awareness of illness. Patient self-management education and problem solving skills development are necessary to be provided in diabetic clinic plan through a variety of strategies and techniques. Creation of a primary care diabetes clinic with trained paramedics who provide individual or group education, life-styles counseling, and diabetic complications screening will help to improve diabetic control and insulin acceptance. Many evidence-based studies have found that diabetic self-management education had significantly improved the clinical outcomes,...
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...Arts and the Education of Artists: Art and Story CONTENTS SECTION ONE: Marcel’s Studio Visit with Elstir……………………………………………………….. David Carrier SECTION TWO: Film and Video Narrative Brief Narrative on Film-The Case of John Updike……………………………………. Thomas P. Adler With a Pen of Light …………………………………………………………………… Michael Fink Media and the Message: Does Media Shape or Serve the Story: Visual Storytelling and New Media ……………………………………………………. June Bisantz Evans Visual Literacy: The Language of Cultural Signifiers…………………………………. Tammy Knipp SECTION THREE: Narrative and Fine Art Beyond Illustration: Visual Narrative Strategies in Picasso’s Celestina Prints………… Susan J. Baker and William Novak Narrative, Allegory, and Commentary in Emil Nolde’s Legend: St. Mary of Egypt…… William B. Sieger A Narrative of Belonging: The Art of Beauford Delaney and Glenn Ligon…………… Catherine St. John Art and Narrative Under the Third Reich ……………………………………………… Ashley Labrie 28 15 1 22 25 27 36 43 51 Hopper Stories in an Imaginary Museum……………………………………………. Joseph Stanton SECTION FOUR: Photography and Narrative Black & White: Two Worlds/Two Distinct Stories……………………………………….. Elaine A. King Relinquishing His Own Story: Abandonment and Appropriation in the Edward Weston Narrative………………………………………………………………………….. David Peeler Narrative Stretegies in the Worlds of Jean Le Gac and Sophe Calle…………………….. Stefanie Rentsch SECTION FIVE: Memory Does The History of Western Art Tell a Grand Story?……………………………………...
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...COMPASSION FATIGUE AMONG HEALTHCARE WORKERS A PROPOSAL PRESENTED TO THE FACULTY OF THE GRADUATE SCHOOL OF UNIVERSITY OF THE VISAYAS CEBU CITY, PHILIPPINES IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF MASTER OF ARTS IN NURSING MAJOR IN NURSING MANAGEMENT BY: CONCHITA BRANZUELA BERGADO CHAPTER I THE PROBLEM INTRODUCTION: Quality of life among healthcare providers will matter on the quality and safety of patient care. Today the proportion of acute patients entering the health care system through emergency departments continues to grow and the number of patients in the Intensive care unit also increasing. In emergency room department, the Emergency medical services (EMS) workers are primary providers of pre-hospital emergency medical care and integral components of disaster response. The potentially hazardous job duties of EMS workers include lifting patients and equipment, treating acute injuries or life-threatening illnesses, handling hazardous chemical and body substances, and participating in the emergency transport of patients in ground and air vehicles. These duties create an inherent risk for EMS worker occupational injuries and illnesses. Healthcare workers in the Emergency medicine has evolved to treat conditions that pose a threat to life and have a significant risk of morbidity. Work-related stressors in which Emergency Department nurses encounter are numerous as a result of the...
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