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Rachel Life Case

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Rachel’s quality of life could be described as minimal. More specifically Rachel has a severely diminished quality of life. Rachel’s general physical condition has seriously and irreversibly deteriorated, her range of functions have greatly diminished, her ability to communicate with others is minimal, and she suffers discomfort and pain. The following medical conditions of Rachel support why she has a severely diminished quality of life: she has meningococcemia, purpura fulminans (a life-threatening complication of the infection that results in widespread bleeding and tissue destruction); she is on two vasopressors, a high oscillation ventilator, and on peritoneal dialysis. Rachel had a 50% chance of survival at best. If she survived, …show more content…
The staff feels uncomfortable ceasing these life-prolonging treatments for Rachel, who is only seven years old. Her parents felt that every measure that could have been taken to save Rachel had already been taken. They were very thankful for the care given by the medical team, but they believed that God was fulfilling his will for Rachel’s life and that the decision to keep her alive any longer was not their choice. They expressed that they would like to remove Rachel from the ventilator and vasopressors because of their Christian beliefs. Her mother said, “You have to understand that when you believe there is a wonderful life after death, you know your daughter will be going to a better place.” The parents in this case have every right to make this decision on Rachel’s behalf, as she is only seven years old and they are her biological parents who have cared for her throughout her entire life. The tough decision that her parents made was not based on worries of the financial burden that Rachel would be if she survived. They genuinely wanted their daughter to join the Lord on her own time instead of having an extremely difficult life supported by artificial means. Their decision is entirely based on their religious beliefs and their concern of what is best for their daughter. The legal issues would arise if the ethics committee ended up not agreeing with the parents, but they understood after Rachel’s parents explained why they felt the way they did. As the article states, “Narrative is necessary to understand who people are, what is important to them, and how they see the issue in question and the values at stake.” The main concern of the health professionals was whether or not they would be making the best decision of going against what they were hired to do, which is care for their patient. They also were concerned if this was what was best for

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