Ever seen someone struggle with a rare disease?
Frank Dinucci is a common person, who was shattered when he saw his 3-year-old son diagnosed with Duchenne Muscular Dystrophy. A rare degenerative genetic muscle disease, Duchenne Muscular Dystrophy leaves a sufferer with a life expectancy of 30 years. Earlier the disease had the life expectancy till teenage; Frank’s efforts and dedication have helped the researchers to find an ultimate cure for it.
This disease is a sex-linked disease and only affects the boys at a young age. It encumbers the production of muscles cells in the body that holds the cellular membrane together. Young boys bound to a wheelchair in most cases, as they lose the ability to create that protein entirely.
They experience …show more content…
It was disheartening for Frank to know about his son’s condition, but this doesn’t deter him from finding a cure to this dreadful disease. Frank Dinucci Jr. smile inspired Frank to find a cure for this disease, so when another child suffers from the same, then he can be cured.
Frank, along with his son, started to know more about the disease and came to know about the research held at the University of Columbia. After knowing the details, he started collecting funds by traveling to New York City from Raleigh; the father-son duo started offering a lift to the people in between the two places and offered the lift at a low price, so, everyone can afford it.
This time, they offered them a hot lunch and ice-cream and the cost for traveling to any distance between the two places was ten dollars. They indulge in such kind of activities every year and even conduct campaigns for the same. The motive is to aware people about the disease and asks a donation to fund h cure of the disease.
To this day, the campaigns and travel funding is successful, which is why the University of Columbia has found a cure to increase the life expectancy of the disease till 30 years. This is an achievement for the father-son duo and they have come a long way, which is why Frank believe that this disease will someday, find a permanent