Adrenoleukodystrophy (ALD) is a male specific disease also known as an X linked disease, woman only carry the disease ALD. A child may seem healthy the first couple years of life. ALD doesn’t start to show until about age five, usual when the child starts kindergarten their behavior with focusing and understanding starts to drastically change. Parents start to pay closer attention to the drastic and rapid change within their child’s behavior.
Usual changes within appearance and behavior are loss or motor skills, trouble with language comprehension, loss of hearing, crossed eyes, coma, paralysis, and vision impairment. These symptoms progress rapidly if not found soon enough. What causes these symptoms are caused by a mutated X chromosome. The reason why ALD affects only men is because men only have one X chromosome and the disease mutates the X chromosome resulting in Adrenoluekodystrophy.Also our bodies have a protein called ALPD which …show more content…
We aim to take away the mystery of ALD and replace it with knowledge and understanding of this devastating disease that is affecting our families.” (Sherwood 1)
This organization is trying to get their voice out to the public so people are fully aware of the dangers of this disease and the hardships different individuals have to go through. Another goalthis organization is trying to accomplish is that every newborn should have to get a screening.There are many ways anyone can join the fight and spread awareness for this disease. Making a donation, sponsoring a fundraiser, putting out fliers, and buying merchandise are ways people can get involved with